ILRU - Independent Living Research Unit at TIRR http://www.ilru.org/ NCIL - National Council on Independent Living http://www.ncil.org/ TIRR - The Institute for Rehabilitation & Research http://www.tirr.org/tirr/ The original message, intended for hosting sites, read: Deadline for IL NET Registration: January 16, 2002 IL NET Presents Teleconference: Understanding & Accommodating Multiple Chemical Sensitivity FEBRUARY 20, 2002 One of the newest disability populations that Independent Living organizations are interested in serving is persons with Multiple Chemical Sensitivity. Also known as Environmental Illness or Chemical Injury, this disability presents a number of unique challenges for access and inclusion. In this teleconference, two of the nation's most knowledgeable authorities on the subject will give you some basic tools and strategies for working more effectively with this population. Join us to: Understand the nature of Multiple Chemical Sensitivity and how it affects people's lives Gain perspective on how prevalent the disability really is Get acquainted with some of the key public policy and advocacy issues surrounding rights for people with MCS Learn what accommodations you can make to enhance your capacity to serve and involve people with this disability Get authoritative answers to your critical questions Register early! IL NET presents - Understanding and Accommodating Multiple Chemical Sensitivity Multiple chemical sensitivity may affect as much as 33% of the population but still remains a misunderstood and often overlooked disability. Although MCS is covered by the Americans with Disabilities Act, people with this disability are denied access every day because of the common use of chemicals in our everyday world. Symptoms can range from relatively mild to life-threatening and require various degrees of lifestyle and environmental changes. This presents some unusual challenges for independent living organizations in trying to be totally inclusive and accessible. This teleconference will give you the facts to understand this disability and how to accommodate it. TRAINING MATERIALS Training materials will be provided to each site shortly after the registration cut-off date of January 16, 2002. A hard copy as well as a disk copy of the materials will be provided to assist site coordinators with providing alternate formats for their site participants. NCIL must receive your registration form and fee prior to mailing the training material. WHAT EQUIPMENT WILL I NEED? All you will need is a conference room and a high quality speakerphone. ALTERNATE FORMATS Site coordinators are responsible for ensuring the accessibility of their sites. To obtain alternate formats at no charge please contact Braille Works via e-mail at brailleworks@brailleworks.com or via FAX at 813-689-8628. Alternate formats must be ordered 7 days in advance to avoid shipping charges. HOW DO I CONNECT WITH THE TELECONFERENCE? In the confirmation letter that you receive with your training material, you will be given the access code. You will then need to call the NCIL office to get your site specific PIN number. On the day of the teleconference, you will need to call at least 10-15 minutes prior to the start of the call. When you call you will key in the access code and your pin number. We will begin the live teleconference promptly as scheduled at 3:00 pm Eastern, 2:00 pm Central, 1:00 pm Mountain, and 12:00 noon Pacific. YOUR TRAINERS Pamela Gibson, Ph.D., Associate Professor of Psychology at James Madison University has been researching the life impacts of multiple chemical sensitivity since 1992. Her research has resulted in several journal articles, numerous conference presentations and the self-help book MULTIPLE CHEMICAL SENSITIVITY: A SURVIVAL GUIDE (New Harbinger Publications, 2000). Mary Lamielle is Executive Director of the National Center for Environmental Health Strategies, Inc. where she provides clearing-house services, technical assistance, policy development, research, and advocacy for those injured by chemical and environmental exposures. She is frequently sought after as an MCS expert by television/radio, newspapers, professional journals, as well as Congress. EXPANDING THE POWER OF THE IL MOVEMENT This seminar is brought to you by IL NET, a project spearheaded by the Independent Living Research Utilization (ILRU) Program in partnership with the National Council on Independent Living (NCIL). Through IL NET, you have access to a variety of resources to advance your understanding of independent living including: Highly rated training programs Technical assistance resources to answer your specific questions Publications, organizations, and other valuable resources And much more To learn more about what IL NET can do for you: Contact ILRU at 713-520-0232 (V) 713-520-5136 (TTY) or on-line at www@ilru.org Contact NCIL at 877-525-3400 (V/TTY) or ncil@ncil.org AGENDA PRE-TELECONFERENCE DISCUSSION AT SITES 1:45 pm Eastern 12:45 pm Central 11:45 am Mountain 10:45 am Pacific Distribute and review handout materials Please discuss the following with participants: In what ways are you currently serving individuals with Multiple Chemical Sensitivity/Environmental Illness? What other needs have you identified? How might you go about enhancing/expanding your services? LIVE TELECONFERENCE 3:00 pm Eastern 2:00 pm Central 1:00 pm Mountain 12:00 noon Pacific Welcome and Overview Information and Experiences Questions and Answers Conclusion POST-TELECONFERENCE ACTIVITY 4:30 pm Eastern 3:30 pm Central 2:30 pm Mountain 1:30 pm Pacific Make a list of questions for further discussion Ask participants to identify future topics that can be addressed through teleconference training opportunities. Fill out your evaluation forms and return them to the NCIL office. DON'T MISS THIS GREAT SEMINAR BROUGHT TO YOU BY IL NET REGISTRATION FOR FEBRUARY 20 TELECONFERENCE IS CLOSED ____ I can't attend but would like to purchase the audio tapes and training materials for Understanding & Accommodating MCS for $125 # # # ____ YES! Please register me for the National Teleconference: Understanding and Accommodating Multiple Chemical Sensitivity for $125 Payment information: Please enclose a check, or money order, or Credit Card information with your completed registration form and return it to: NCIL 1916 Wilson Blvd., Suite 209, Arlington, VA 22201 Credit Card #________________________________ (ONLY VISA and MasterCard are accepted) Exp. ______________Amount Paid $ ________________ Print name:_________________________________ Authorizing Signature: _________________________ (by signing you authorize NCIL to charge your credit card) A $15.00 administrative fee will be charged for refunds. Site Coordinator's Name: Phone: Organization: E-Mail Mailing Address: TTY: City: State: Zip: Fax: kristy@ncil.org FAX YOUR REGISTRATION IN NOW TO RESERVE YOUR SPACE! To ensure participation, register early. While high attendance is encouraged we must strictly adhere to the cut-off date. Deadline for Registration: January 16, 2002 ____ I can't attend but would like to purchase the audio tapes and training materials for Understanding & Accommodating MCS for $125 Why should one refrain from wearing scented products to meetings? Because synthetic scents contribute to air pollution and are harmful to people living with respiratory disabilities, migraines and other headaches, and chemical injury. To learn more about the petrochemicals used to concoct modern synthetic scents, please visit FDA Petition with Analyses at http://www.ehnca.org/www/FDApetition/bkgrinfo.htm Fragrance-Free Defined by Ecology House Residents http://ehnca.org/www/ecologyh/ecohsrul.htm Visit NIEHS and their Common Indoor Air Pollutantsat http://www.niehs.nih.gov/external/faq/indoor.htm EHN's homepage: http://www.ehnca.org